I first contacted, my MP John Leech, about Mike’s feeding therapy back in August 2013. It was after five months of hearing nothing back, not even an acknowledgment, from the Clinical Commissioning Group, about the treatment I so desperately wanted for my boy. There began a relationship, that changed the course of my family’s future. Especially Mike’s. Continue reading
Category Archives: CCG
#EarlyIntervention
So almost half way through Mike’s first year at pre school.
In our area, we have nurseries connected to our primary schools and Mike has joined his big brother there, in a mainstream school. Continue reading
We need to #TalkAboutCMV
Mike’s birth was nothing but dramatic, the moment my waters broke they were thick with meconium. I was allowed to labour but the doctors struggled to keep a good trace on Mike’s heart and so he was born by emergency caesarean section. Continue reading
A year on…
#mike – week 12
We will often be playing at the park and some one will say “ah, how old is he?” When I reply two and a bit, I’m often met with a sad expression and a person completely lost for words. Their sadness is a reminder his life’s different but I don’t feel sad for him. Continue reading